FOCUS ON FANCONI
Our mission, passion and impetus behind the Caddy For A Cure program is a rare disease called Fanconi anemia.
Each month, we feature a child or family that has courageously been dealing with the disease and a brief description of their unique story. Please look at each child that has been featured below with many more to come…
John Hanna is one very special guy. Born with Fanconi anemia and all of the “traits” of the disease, he has done well in his 38 years on earth to live a relatively normal life. He is married to the lovely Racquel, and they have two children…
Elias Ormond has a unique presentation of FA. As the family says, he was blessed with nearly all of the potential birth defects and abnormalities that can be associated by FA. This makes him very medically complex with nearly 20 doctors overseeing…
Dalton Lundon was a healthy 5 year old little boy. He loved getting dirty, playing in the sand, fighting like all little boys love to fight. He loved playing with his webkinz. He attended kindergarten and loved playing with his friends and having …
(PLEASE NOTE: SAMANTHA LOST HER BATTLE WITH FANCONI ANEMIA IN AUGUST OF 2010. THIS STORY WAS WRITTEN DURING HER TRIALS)
This month’s featured child is Samantha McCarthy. Their journey wit…
(PLEASE NOTE: DYLAN LOST HIS BATTLE WITH FANCONI ANEMIA IN JULY OF 2009. THIS PIECE WAS WRITTEN DURING HIS TRIALS ASSOCIATED WITH FA).
Hi there! My name is Dylan Cole Moore. I am 5 years old. I love cowboys, country music, cooking, and the Andy Griffith Show. I love my dog “Corky” and my pony “Silver” very much! My blood is “sick”. I suffer from…
UPDATE: CARTER PEPPER IS NOW 11 YRS OLD AND CONTINUING HIS FIGHT AGAINST FANCONI ANEMIA. THIS PIECE WAS WRITTEN ALMOST 10 YEARS AGO!)
This month’s featured child is Carter Pepper. Carter is a beautiful, vibrant 2-year old who loves Elmo, trucks, guitars, and playing outside. Although he is small, he appears to be a normal, healthy toddler. What you don’t see, is that he has…
The long and mostly painful – but sometimes joyful – journey for Diane and Mark Pearl began in 1995 when their daughter Alexandra was born premature. After several years of testing, Alex was diagnosed with the rare disease Fanconi Anemia.
“I’m OK Mee-MA, I’m OK” is the constant cry these days from Alicia Reed to her loving Grand Mother, Michelle Colgan, as Alicia goes through her necessary bone marrow transplant at the Cincinnati Children’s Hospital. The innocent 5 y…
Fanconi anemia can be literally devastating to families when their sweet baby is diagnosed with the disease. A bone marrow transplant is absolutely necessary for life to exist and even then, it is questionable as to the length of life that ca…
Fanconi anemia is a rare “orphan” disease. That is, it effects very few around the world but, the results can be devastating. A bone marrow disorder that mandates a marrow transplant for life to continue, Fanconi anemia can often co…
Fanconi anemia knows no boundaries as it devastates families around the world. When we mail you in remote places far from the PGA TOUR, we do so knowing that over 60% of our winning bidders come from a geographic area outside of 300 miles fro…
Since we started our piece on Fanconi Anemia in the Caddy For A Cure Newsletter we have learned of many different cases of this dreaded disease around the world. This newsletter comes with an especially heart warming story about a nine year o…
(PLEASE NOTE: ANTHONY NEGRIN LOST HIS BATTLE WITH FANCONI ANEMIA IN OCTOBER OF 2009. THIS STORY WAS WRITTEN DURING HIS TRIALS)
The 2008 Newsletter series will be including a new article each i…
(PLEASE NOTE: Nicholas Boggs LOST HIS BATTLE WITH FANCONI ANEMIA IN OCTOBER OF 2010. THIS STORY WAS WRITTEN DURING HIS TRIALS)
MySpace.com is one really cool place. You can meet all kinds of people…
This month’s feature on Fanconi is a most unique one and truly inspirational. The Flynn family, in Maine, is comprised of (5) children, (3) of whom have Fanconi Anemia. James is the oldest and is 12 and he doesn’t have FA. Jordan is the next oldest a…